WHAT IS NEUROFIBROMATOSIS?

Genetic

Neurofibromatosis is a genetic disorder of the nervous system or multisystem genetic disorder that is characterized by cutaneous findings, most notably café-au-lait spots and axillary frecklin.It mainly affects how nerve cells form and grow by causing tumors to grow on nerves. You can get neurofibromatosis from your parents, or it can happen because of a mutation (change) in your genes. Once you have it, you can pass it along to your children. Usually the tumors are benign, but sometimes they can become cancerous.

There are three types of neurofibromatosis:
Type 1 (NF1) causes skin changes and deformed bones. It usually starts in childhood. Sometimes the symptoms are present at birth (image below)

Other symptoms include:

Type 1 can cause bone deformities, learning disabilities and high blood pressure. Type 2 can cause hearing loss, vision loss and difficulty with balance. Type 3 can cause chronic pain throughout the body.

People may experience:
Pain areas: in the face
Pain types: can be chronic
Skin: brown spot on skin, armpit freckles, or lumps
Developmental: learning disability or short stature
Whole body: balance disorder or high blood pressure
Sensory: hearing loss or pins and needles
Also common: attention-deficit/hyperactivity disorder, bone deformities, enlarged head, ringing in the ears, scoliosis, seizures, or vision disorder

Type 2 (NF2) causes hearing loss, ringing in the ears, and poor balance. Symptoms often start in the teen years.(Image below)

                     WHAT ARE THE CURE?

Doctors diagnose the different types based on the symptoms. Genetic testing is also used to diagnose NF1 and NF2. There is no cure. Treatment can help control symptoms. Depending on the type of disease and how serious it is, treatment may include surgery to remove tumors, radiation therapy, and medicines.

               IS NEUROFIBROMATOSIS LIFE                                          THREATNING?

In most cases, symptoms of NF1 are relatively mild, allowing patients to live normal and productive lives. However, the disorder can also be debilitating and, in some cases, life-threatening. NF1 can lead to problems within various systems, organs and functions of the body including: Skin, bone and eye abnormalities.

Remembering Stella Adadevoh!
The one who stopped Ebola in Nigeria

What Airport security was ill-equipped to detect, however, was an even deadlier national threat – the virulent etiological agent for Ebola! Hence, in his medical history, he conveniently ignored his recent contact with a case of Ebola, visits to any person infected with the virus in a hospital, or participation in a funeral of a person who died of the disease. All three criteria, it turns out, precisely described Mr. Patrick Sawyer’s status vis-a-vis the late sister, Princess,whom he lost to Ebola, on 8th July.

In Dr. Ameyo Stella Adadevoh, an epidemic found its match that effectively stopped its incurable match of death. Obligations to the Hippocratic Oath of her noble profession compelled the Senior Consultant Physician, First Consultant Medical Center, to do no harm but only good. Her august patient had just landed from endemic Liberia with distinctive symptoms; therefore, she summoned uncommon courage, ignored his denials, queried Ebola nonetheless, arranged for blood analysis, and skilfully turned his hospitalization into quarantine! By doing this, she stopped an Epidemic and saved a nation from a deadly virus.

As soon as his Test from LUTH came back presumptive positive, she promptly alerted Federal and Lagos State Health Ministries. In so doing, she identified the index Ebola patient on Nigerian soil, stopped nationwide spread of the virus, and saved a nation from an epidemic!

While she gave him medical care for his disease, he gave her medical disease for her care! But she patiently absorbed the impact of the infection that she contracted unwittingly without spreading it. In so doing, she saved her nation and averted a looming Epidemic that was not!

A private Clinic that relies on Corporate retainership and patronage of the affluent to get by, should not mess around with a VIP patient; but that, in a nutshell, is all she did by defying the petulance of a Liberian ECOWAS delegation that pressured her to discharge Mr. Sawyer to attend the “8th Joint Retreat of ECOWAS Institutions, Permanent Representatives and National Units”. By denying him medical clearance to proceed to Calabar, she saved Nigeria from an imminent Epidemic….

…Yes, with her very life, she made a supreme sacrifice but saved a nation from ominous Ebola epidemic!

If ever a case or nominee for posthumous National honour is needed, CASE CLOSED…!!!

Much Respect, many Thanks, and GOD bless the memory of Dr. Ameyo Stella Adadevoh!!…

DR. JOE OKUNGBOWA IS TENURED PROFESSOR IN FLORIDA

You are what you eat....Fhf

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